Advance Care Planning: Knowledge, Barriers, Benefits and Clinical Application among Healthcare Professionals. A Narrative Review
Patricia Bonilla Sierra1, Noelia Trujillo Aguirre2, Karen Quizphe Quizphe2
1Ciencias de la Salud. Universidad Técnica Particular de Loja, Loja. 2Departamento de Ciencias de la Salud. Universidad Técnica Particular de Loja, Loja
Abstract
Objective: To analyze the knowledge, application, and barriers faced by healthcare professionals regarding Advance Care Planning, as well as to propose a formative and operational intervention model that facilitates its effective implementation across different levels of the healthcare system.
Methods: A search of articles published in the databases PubMed, Dialnet, Google Scholar, Scielo, and Scopus, from the last 10 years was carried out, the search began in November 2023 and ended in January 2024.
Results: 102911 studies were identified, of which 27 were selected according to the inclusion criteria. The findings were analyzed by grouping them into four: Knowledge of healthcare personnel about advance decision planning; Application of advanced decision planning; Barriers in its implementation; and Quality at the end of life. The review evidenced that, although there is an ongoing effort to expand knowledge about advanced decision planning, there are still persistent formative gaps that generate uncertainty in healthcare professionals and hinder its application in clinical practice.
Conclusions: Despite the continuous effort of health professionals to be trained in advance decision planning within palliative care, their knowledge remains limited. Its implementation facilitates decision making, reducing anguish in patients, family members and healthcare team, as well as avoiding unnecessary procedures. It is crucial to strengthen training in this field to improve the quality of end-of-life care.
DOI: 10.20986/medpal.2025.1496/2024
Palliative sedation in home care, number of cases study.
LIANA PEÑARANDA1, Álvaro Castañeda Hernández2, Raitza Bohórquez Pérez3, LUZ Cáceres Jerez4
1Clínica de dolor y cuidados palaitivos. Painfree, C.C. (Cédula de Ciudadanía). 2Instituto Macira, facultad de ciencias médicas . Universidad de Santander, Bucaramanga. 3Programa de enfermería. Universidad Cooperativa de Colombia, Bucaramanga. 4Dolor y cuidado paliativo. Painfree SAS, Bucaramanga
Introduction: The Palliative sedation at home is a management alternative in the control of refractory symptoms of people in end-of-life, reducing the suffering of the sick person and his/her family. Materials and methods: It’s a quantitative, descriptive, number of cases study, based on the review of clinical records of patients who received palliative sedation treatment as part of end-of-life care in a Palliative care home program in Bucaramanga, Colombia. It’s shown absolute and relative frequencies for qualitative variables, and measures of central tendency for quantitative variables. Results: most patients presented dyspnea as only refractory symptom at the end-of-life, a combination of morphine and midazolam was used in most cases, and the average duration from the onset of sedation to death was 1.72 days. Discussion: Unlike other studies, the proportion of patients with oncological and non-oncological diseases was equivalent, the dyspnea continues to be the main at end-of-life, patient death occurred in less than 48 hours, which ratifies the indication for palliative sedation.
DOI: 10.20986/medpal.2025.1467/2024
Explaining factors of medication errors with opioids in patients with palliative needs followed by ESAPDs/AECC of the Community of Madrid
Genoveva Díaz Sierra1, María Consuelo Fernández Gómez2, María del Carmen Peinado Cañaveras3, Miriam Villar de las Heras3, Ana María Ortega San Martín3, María Antonia Berrocal Higuero3, EMOPALD GRUPO4, Rocio Jiménez Sánchez5, Ester García Gimeno5, Rosario Pastor Agudo5, Mª de la Paz Agustín Illueca5, Lara Sanz Ventureira6, Aránzazu Gutiérrez Bermúdez7, Ana López Núñez8, Elisabeth Gutiérrez Bermúdez8, Gema Vizcaya Horno8, Marta Merlo Loranca8, Olga Monclús González8, Miriam Bravo Prados8, Sofía Alba Sánchez7, Cristina de Miguel Sánchez6, Cristina Morán Tiesa6, Eugenia Molinero Blanco9, Ester Sanz Fernández10, María Félix Ortiz Jiménez:11, Alicia Freijo Martínez12, Pilar Aria Ferrer13, Consuelo Tosao Sánchez14, Carmen Domínguez Lorenzo9, Alberto García González14, María Mercedes Portillo Ruiz15, Mercedes Domínguez Molina15, Rafaela Fernández Ramos15, Amparo María Sánchez Borrego15, José Manuel Cano15, Claudia Inés Vallejo Ochoa16, Blanca Prieto Ríos17
1ESAPD de DASUR Madrid. C.S Huerta de los Frailes, Madrid. 2ESAPD DASUR, . 3ESAPD DASUR Madrid. C. S. Huerta de los Frailes, . 4ESAPD DE LA CAM, . 5ESAPD Dasur . C.S Huerta de los Frailes, . 6ESAPD DACentro. C.S. Espronceda, . 7ESAPD Centro. C.S. Espronceda, . 8ESAPD Centro. C.S Goya, . 9ESAPD . C.S. , . 10ESAPD DAESTE. C.S. La Garena , . 11ESAPD . C.S. La Garena , . 12ESAPD Noroeste. C.S. Sierra de Guadarrama, . 13ESAPD DAOESTE . C.S. los Castillos , . 14ESAPD DAOESTE. C.S.Sierra de Guadarrama, . 15ESAPD SURESTE. C.S. Arroyo de la Media Legua, . 16AECC ALCORCON , . 17AECC ARAVACA ,
Patients with palliative needs can be more prompt to medication errors, due to several factors such as the presence of polypharmacy, complex drug regimens, advanced age, and the presence of associated comorbidities. The objective of the present study is to analyze the factors related to the presence of medication errors with opioids, in patients with advanced chronic disease and palliative needs attended by home palliative care teams in a region. The presence of medication error was associated with a lower level of patient education, p<0.001, and with a lower number of days of follow-up by the home palliative care teams, p<0.001. A multivariate analysis was performed where all the variables associated with medication error were introduced with p<0.20, resulting in a model, p<0.001, -2LL 435.579 and Nagelkerke R squared 0.231. With this, an explanatory model was obtained in which, if the patient had the last treatment written by the professional, OR (95% CI) 0.300 [0.126-0.711], p<0.006, he was protected by 70% of a medication error to occur, and having adherence to treatment, OR (95% CI) 0.132 [0.073-0.241], p<0.000, was 87% protective against a medication error occurring. On the contrary, patients who were illiterate or only knew how to read and write, OR (95% CI) 2.090 [1.241-3.520], p<0.006, had twice the risk of a medication error occurring than if they had primary education , secondary or university.
DOI: 10.20986/medpal.2025.1564/2024
A new Gnosticism
Alvaro Sanz1, María del Valle2, Luis Alberto Flores3
1Oncología Médica. Hospital Universitario del Río Hortega, . 2Servicio de Radioterapia. Hospital Clínico Universitario, . 3Servicio de Formación y Evaluación de las Especial. Gerencia de Salud de Castilla y León,
DOI: 10.20986/medpal.2025.1592/2025
Record of Spiritual Needs in Referrals to Palliative Care Units in the Community of Madrid
Xabier Azcoitia Zabaleta1, Rosa Ruiz-Aragoneses2, Bernardino Lozano González1, David Almaraz Morocho3, José Carlos Bermejo Higuera4
1Atención Espiritual. Centro de Humanización de la Salud San Camilo, TRES CANTOS. 2Investigacion. Centro de Humanizacion de la Salud, TRES CANTOS. 3Investigación. Centro de Humanización de la Salud San Camilo, Tres Cantos. 4Dirección. Centro de Humanización de la Salud San Camilo , Tres Cantos
Objective: Identify to what extent spiritual needs are recorded in patients when referred to a Palliative Care Unit.
Material and Methods: Data from 1,159 palliative care patients were collected, primarily concerning the spiritual and psychosocial needs reported by professionals in the referral protocol. Along with descriptive analyses, the relationship between spiritual and psychosocial needs was evaluated using the Chi-Square statistic and Fisher's Exact Test.
Results: The sample includes a similar percentage of men and women, mostly over 66 years old with a history of cancer. A low recording of spiritual needs was observed, with existential distress being the most prominent among them. Approximately half of the participants had some form of psychoemotional need. The relationship between both types of needs was found to be statistically significant.
Discussion: Despite the recognized prevalence and importance of patients' spiritual needs, the study shows a deficiency in the recording of these needs during palliative care admissions. The findings suggest the need to include spirituality in the training curricula of professionals, as well as to develop standardized tools that facilitate a comprehensive and early assessment of these needs.
DOI: 10.20986/medpal.2025.1581/2025
Implementation of human figures made with plasticine/modeling clay as a clinical tool to address difficult-to-manage pain in patients with advanced cervical cancer. Report of 5 cases
Georgina Dominguez Ocadio1, Silvia Rosa Allende Perez2, Andrea Paulina Flores Gonzalez3, David Reyes Chiquete2, Emma Verategui Aviles2
1Cuidados paliativos. Instituto Nacional de Cancerología, Tlalpan. 2Cuidados Paliativos. Instituto Nacional de Cancerología, Ciudad de México, México, Ciudad de México. 3Cuidados Paliativos. Benemérito Hospital General Juan María de Salvatierra, La Paz
Managing difficult-to-control pain in patients with cervical cancer represents a major challenge for the palliative care team, combined with limited social factors and suffering; having a clinical tool such as plasticine human figures favors expression and an appropriate therapeutic approach.
DOI: 10.20986/medpal.2025.1493/2024
Advanced heart failure as a reason for admission to a medium-stay palliative care unit in the Community of Madrid: beyond oncological pathology
Gemma Cuesta Castellón1, Concepción Jiménez Rojas2, Saleta Goñi Rosón3, Lucía Gómez González4, Javier Gómez Pavón5
1Geriatría . Hospital Universitari de Vic, Vic. 2Unidad de Cuidados Paliativos. Hospital Universitario Central de la Cruz Roja, . 3Geriatria. Hospital Universitario Infanta Sofía, Madrid. 4Geriatría. Hospital Universitario de Ginebra, . 5Jefe de Servicio de Geriatria. Hospital Universitario Central de la Cruz Roja,
Patients with Advanced Congestive Heart Failure (ACHF) depending on their complexity may be eligible for specialized Palliative Care (PC) treatment. The profile of cardiology patients admitted to a Medium Stay Palliative Care Unit (MSPCU) is described in comparison to patients with other non-oncological and oncological pathologies.
DOI: 10.20986/medpal.2024.1502/2024